“I have photosensitivity,” she previously told Who. “It’s an autoimmune disease and is a mild cousin of lupus.”
She says her weight can go up by six kilograms due to the condition.
“I get a lot of the lupus symptoms and when I’m in a flare-up, I burn, as if you’re holding fire to the skin,” Elizabeth says. “It’s hard for me to even be near a window.”
“I’ve wanted to do this for a while, post this picture,” she began.
“Back and forth I heard the comments of many of you talking the chit chat about my hair. Also, how often I change it up. I have periods in a flare up where I lose my hair.
“It's horrendous when this happens. I used to cry and scream and shout because I didn't know why I was waking up with clumps in my bed. This happens to many people out there suffering from chronic illness.”
RELATED: 8 Signs You Might Have Lupus
The hair colour chameleon says she has “no real attachment to my hair” and hoped her followers and those who suffer from similar conditions to embrace their journey.
“I just don’t want people to be ashamed of these things. Much love and respect to you out there,” she said.
This article originally appeared on InStyle