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I'm A Celebrity's Erin Barnett Opens Up About Living With Endo And PCOS

"Any movement makes me feel like my ovaries are exploding." - by Lauren Williamson
  • 07 Jan 2020
I'm A Celebrity's Erin Barnett Opens Up About Living With Endo And PCOS

Reality TV veteran Erin Barnett is one of the 12 stars on I'm A Celebrity... Get Me Out Of Here and the charity she's supporting with her stint in the jungle is one very close to her heart, or more fittingly, her reproductive system.

The 24-year-old says she chose Endometriosis Australia as she's suffered from the condition since she was 12, but only diagnosed recently. Should she win the $100,000 prize, Barnett says she hopes it will help find a cure for the disease in which tissue similar to the lining of the uterus grows outside it, causing debilitating pain and infertility.

"I've chosen also because it's about being a battler, we call it an "Endo Warrior" so knowing that i'll be in the jungle fighting for more money for my charity and knowing that there are women out there fighting there own battles, I'm in there for them," she said. 

The Love Island and Beauty and the Geek has previously taken to social media to share her honest experience dealing not only with endometriosis, but polycystic ovary syndrome (PCOS).

"Just because you can’t see my insides and how bad I have PCOS & endometriosis doesn’t mean my pain can’t be validated," she wrote. "It’s so hard for people to understand just how painful PCOS and endometriosis is."

Barnett says she'd often be bed bound due to pain and heavy bleeding. 

"My pain gets so bad. Any movement makes me feel like my ovaries are exploding. ⁣I have burn marks on my pelvic area from constantly having heat packs on me, and the sensation of the burning is more comfortable than the pain inside me so I leave it."

erin.alysha View Profile
43.3k likes - View Post on Instagram
I want to keep my instagram as raw & honest with you all. ⁣ ⁣ Recently I had my 4th surgery THIS year because of big cysts growing inside my ovaries. ⁣ This surgery was a little different though, once I came out I started to have a panic attack. I don't know why? I just started panicking real bad & it took so long for the nurses & doctors to calm me down, even with all the medications. This caused me to hurt my stomach right after surgery. The air pain is in my shoulders & even breathing is painful because of that. ⁣ I'm on all the strongest pain medication & I'm still crying out in pain because NOTHING helps. ⁣ ⁣I was encouraged not to upload this photo to my "feed" as it "ruins" my instagram & some brands may not want to work with me? ⁣ So that made me want to upload this even more. I'm not doing this for sympathy, I don't need sympathy from anyone. I'm doing it because I want everyone to have a better understanding of PCOS & endometriosis. ⁣ ⁣ Just because you can't see my insides & how bad I have PCOS & endometriosis doesn't mean my pain can't be validated. It's so hard for people to understand just how painful PCOS & endometriosis is. ⁣ ⁣ I'm bed bound a lot of the time, I randomly have clots come out of me during the day. No warning - no nothing. My body is like "pssst, I have a present for you lel". ⁣ ⁣ My pain gets so bad. Any movement makes me feel like my ovaries are exploding. ⁣ ⁣ I have burn marks on my pelvic area from constantly having heat packs on me, & the sensation of the burning is more comfortable than the pain inside me so I leave it. ⁣ I have blocked Fallopian tubes, a weird thing with my eggs where I either don't produce any or the ones I have are "empty" & cause more cyst. My endometriosis is spread EVERYWHERE & is on EVERYTHING inside me. ⁣ ⁣ So please, be more caring & understanding towards women going through a similar situation.⁣ I can still live my life, I'm doing okay, I'm hoping after this surgery I'm back to my normal self & achieving more goals. THIS WILL NOT STOP ME!💕 ⁣ I just want to use my platform to share this. I'm just 1 of MANY women suffering from this. ⁣ #endometriosis #endometriosisawareness #pcos #selfiebeforesurgery

Barnett also revealed that she's recently had successful surgery to remove her left ovary and some of the endometriosis.

"I’m literally pain free as I type this. As in, no crazy ovary pain...because it’s no longer in my body!" she wrote. 

"I’ve had countless surgeries for PCOS and endometriosis. I’ve been asking, begging & pleading for someone to take out my left ovary because of the pain and cyst it causes me on the daily. Sadly, as per usual; no one was listening to me! It’s my body let me do what I want with it! It is literally the most frustrating thing in the world being told what you can and cannot do with your body."

“The more I’ve been speaking about it the more I’ve realised people have it. Some women don’t realise they have it until they’ve seen something I’ve posted,” she told 10 Daily.

She hopes that winning the competition will help spread further awareness and support the endo community. 

“Wouldn’t that just be the cherry on top?” she said, “Especially coming out of such a sh*t year, to win it for them. That would be really cool.”

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Lauren Williamson
Lauren Williamson
Lauren Williamson is the Digital Content Manager for Women's Health and Men's Health. She's an experienced journalist, editor and social media fiend who's well versed in reporting on everything from food trends to fitness, health news to haircare. She has a double degree in Journalism and Political Science.

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